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1

Minors and Informed Consent: A Comparative Approach

Nys, Herman, Dierickx, Kris, Borry, Pascal, Stultiëns, Loes, Goffin, Tom

Journal:

European Journal of Health Law

Year:

2007

Language:

english

File:

PDF, 194 KB

english, 2007

2

Where are you going, where have you been: a recent history of the direct-to-consumer genetic testing market

Pascal Borry, Martina C. Cornel, Heidi C. Howard

Journal:

Journal of Community Genetics

Year:

2010

Language:

english

File:

PDF, 143 KB

english, 2010

3

Old Challenges or New Issues? Genetic Health Professionalsâ Experiences Obtaining Informed Consent in Diagnostic Genomic Sequencing

Vears, Danya F., Borry, Pascal, Savulescu, Julian, Koplin, Julian J.

Journal:

AJOB Empirical Bioethics

Year:

2020

File:

PDF, 1.36 MB

2020

4

The Landscape of the “Spirit of Sport”

Obasa, Mojisola, Borry, Pascal

Journal:

Journal of Bioethical Inquiry

Year:

2019

Language:

english

File:

PDF, 321 KB

english, 2019

5

THE BIRTH OF THE EMPIRICAL TURN IN BIOETHICS

PASCAL BORRY, PAUL SCHOTSMANS, KRIS DIERICKX

Journal:

Year:

2005

Language:

english

File:

PDF, 113 KB

english, 2005

6

Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening

Dondorp, Wybo, de Wert, Guido, Bombard, Yvonne, Bianchi, Diana W, Bergmann, Carsten, Borry, Pascal, Chitty, Lyn S, Fellmann, Florence, Forzano, Francesca, Hall, Alison, Henneman, Lidewij, Howard, Heid

Journal:

European Journal of Human Genetics

Year:

2015

Language:

english

File:

PDF, 599 KB

english, 2015

7

Empirical Ethics

LEGET, Carlo, BORRY, Pascal

Journal:

Ethical Perspectives

Year:

2010

Language:

english

File:

PDF, 225 KB

english, 2010

8

Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts

Shabani, Mahsa, Thorogood, Adrian, Borry, Pascal

Journal:

European Journal of Human Genetics

Year:

2016

Language:

english

File:

PDF, 147 KB

english, 2016

9

‘NOBODY TOSSES A DWARF!’ THE RELATION BETWEEN THE EMPIRICAL AND THE NORMATIVE REEXAMINED

CARLO LEGET, PASCAL BORRY, RAYMOND DE VRIES

Journal:

Year:

2009

Language:

english

File:

PDF, 118 KB

english, 2009

10

Patient rights in EU Member States after the ratification of the Convention on Human Rights and Biomedicine

Herman Nys, Loes Stultiëns, Pascal Borry, Tom Goffin, Kris Dierickx

Journal:

Year:

2007

Language:

english

File:

PDF, 167 KB

english, 2007

11

What is the role of empirical research in bioethical reflection and decision-making? An ethical analysis

Pascal Borry, Paul Schotsmans, Kris Dierickx

Journal:

Medicine, Health Care and Philosophy

Year:

2004

Language:

english

File:

PDF, 144 KB

english, 2004

12

Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation

Shabani, Mahsa, Borry, Pascal

Journal:

European Journal of Human Genetics

Year:

2017

Language:

english

File:

PDF, 413 KB

english, 2017

13

Italian appeal court: a genetic predisposition to commit murder?

Forzano, Francesca, Borry, Pascal, Cambon-Thomsen, Anne, Hodgson, Shirley V, Tibben, Aad, de Vries, Petrus, van El, Carla, Cornel, Martina

Journal:

European Journal of Human Genetics

Year:

2010

Language:

english

File:

PDF, 144 KB

english, 2010

14

Public Views on Genetics and Genetic Testing: A Survey of the General Public in Belgium

Chokoshvili, Davit, Belmans, Carmen, Poncelet, Roxanne, Sanders, Sofie, Vaes, Deborah, Vears, Danya, Janssens, Sandra, Huys, Isabelle, Borry, Pascal

Journal:

Genetic Testing and Molecular Biomarkers

Year:

2017

Language:

english

File:

PDF, 150 KB

english, 2017

15

Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?

Shabani, Mahsa, Dove, Edward S., Murtagh, Madeleine, Knoppers, Bartha Maria, Borry, Pascal

Journal:

Biopreservation and Biobanking

Year:

2017

Language:

english

File:

PDF, 123 KB

english, 2017

16

The athlete biological passport: challenges and possibilities

Devriendt, Thijs, Chokoshvili, Davit, Borry, Pascal

Journal:

International Journal of Sport Policy and Politics

Year:

2019

File:

PDF, 1.14 MB

2019

17

Clinical management, ethics and informed consent related to multiâgene panelâbased high throughput sequencing testing for platelet disorders: Communication from the SSC of the ISTH

Downes, Kate, Borry, Pascal, Ericson, Katrin, Gomez, Keith, Greinacher, Andreas, Lambert, Michele, Leinoe, Eva, Noris, Patrizia, Van Geet, Chris, Freson, Kathleen

Journal:

Journal of Thrombosis and Haemostasis

Year:

2020

File:

PDF, 9.25 MB

2020

18

Marginally scientific? Genetic testing of children and adolescents for lifestyle and health promotion

Caulfield, Timothy, Borry, Pascal, Toews, Maeghan, Elger, Bernice S., Greely, Henry T., McGuire, Amy

Journal:

Journal of Law and the Biosciences

Year:

2015

Language:

english

File:

PDF, 361 KB

english, 2015

19

Do Athletes Have a Right to Access Data in Their Athlete's Biological Passport?

Devriendt, Thijs, Chokoshvili, Davit, Favaretto, Maddalena, Borry, Pascal

Journal:

Drug Testing and Analysis

Year:

2018

Language:

english

File:

PDF, 477 KB

english, 2018

20

Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms

Vears, Danya F., Niemiec, Emilia, Howard, Heidi Carmen, Borry, Pascal

Journal:

European Journal of Human Genetics

Year:

2018

Language:

english

File:

PDF, 466 KB

english, 2018

21

How does carrier status for recessive disorders influence reproductive decisions? A systematic review of the literature

Cannon, Jeffrey, Van Steijvoort, Eva, Borry, Pascal, Chokoshvili, Davit

Journal:

Expert Review of Molecular Diagnostics

Year:

2019

Language:

english

File:

PDF, 973 KB

english, 2019

22

Current issues in medically assisted reproduction and genetics in Europe: research, clinical practice, ethics, legal issues and policyEuropean Society of Human Genetics and European Society of Human Reproduction and Embryology

Harper, Joyce C, Geraedts, Joep, Borry, Pascal, Cornel, Martina C, Dondorp, Wybo, Gianaroli, Luca, Harton, Gary, Milachich, Tanya, Kääriäinen, Helena, Liebaers, Inge, Morris, Michael, Sequeiros, Jorge

Journal:

European Journal of Human Genetics

Year:

2013

Language:

english

File:

PDF, 968 KB

english, 2013

23

Raw Genomic Data: Storage, Access, and Sharing

Shabani, Mahsa, Vears, Danya, Borry, Pascal

Journal:

Trends in Genetics

Year:

2017

Language:

english

File:

PDF, 348 KB

english, 2017

24

The athlete biological passport: challenges and possibilities

Devriendt, Thijs, Chokoshvili, Davit, Borry, Pascal

Journal:

International Journal of Sport Policy and Politics

Year:

2019

Language:

english

File:

PDF, 1.14 MB

english, 2019

25

Consent insufficient for data release

Sills, Jennifer, Nicol, Dianne, Eckstein, Lisa, Bentzen, Heidi Beate, Borry, Pascal, Burgess, Mike, Burke, Wylie, Chalmers, Don, Cho, Mildred, Dove, Edward, Fullerton, Stephanie, Ida, Ryuchi, Kato, Ka

Journal:

Year:

2019

Language:

english

File:

PDF, 1.40 MB

english, 2019

26

On the Epistemic Status of Prenatal Ultrasound: Are Ultrasound Scans Photographic Pictures?

Favaretto, Maddalena, Vears, Danya F, Borry, Pascal

Journal:

Journal of Medicine and Philosophy

Year:

2020

File:

PDF, 168 KB

2020

27

International survey on attitudes toward ethics in health technology assessment: An exploratory study

Arellano, Luis E., Willett, Jeffrey M., Borry, Pascal

Journal:

International Journal of Technology Assessment in Health Care

Year:

2011

Language:

english

File:

PDF, 129 KB

english, 2011

28

Talent in sports. Some reflections about the search for future champions

Buekers, Martinus, Borry, Pascal, Rowe, Paul

Journal:

Movement & Sport Sciences - Science & Motricité

Year:

2015

Language:

english

File:

PDF, 259 KB

english, 2015

29

Forensic Epigenetic Age Estimation and Beyond: Ethical and Legal Considerations

Shabani, Mahsa, Borry, Pascal, Smeers, Inge, Bekaert, Bram

Journal:

Trends in Genetics

Year:

2018

Language:

english

File:

PDF, 349 KB

english, 2018

30

Variant data sharing by clinical laboratories through public databases: consent, privacy and further contact for research policies

Shabani, Mahsa, Dyke, Stephanie O. M., Marelli, Luca, Borry, Pascal

Journal:

Genetics in Medicine

Year:

2018

Language:

english

File:

PDF, 240 KB

english, 2018

31

Attitudes towards predictive genetic testing in minors for familial breast cancer: A systematic review

Pascal Borry, Louise Stultiëns, Herman Nys, Kris Dierickx

Journal:

Critical Reviews in Oncology/Hematology

Year:

2007

Language:

english

File:

PDF, 147 KB

english, 2007

32

Evidence-based medicine and its role in ethical decision-making

Pascal Borry, Paul Schotsmans, Kris Dierickx

Journal:

Journal of Evaluation in Clinical Practice

Year:

2006

Language:

english

File:

PDF, 63 KB

english, 2006

33

Whole-genome sequencing in health care

van El, Carla G, Cornel, Martina C, Borry, Pascal, Hastings, Ros J, Fellmann, Florence, Hodgson, Shirley V, Howard, Heidi C, Cambon-Thomsen, Anne, Knoppers, Bartha M, Meijers-Heijboer, Hanne, Scheffer

Journal:

European Journal of Human Genetics

Year:

2013

Language:

english

File:

PDF, 248 KB

english, 2013

34

Closure of population biobanks and direct-to-consumer genetic testing companies

Ma’n H. Zawati, Pascal Borry, Heidi Carmen Howard

Journal:

Year:

2011

Language:

english

File:

PDF, 258 KB

english, 2011

35

A proposal for a model of informed consent for the collection, storage and use of biological materials for research purposes

Corinna Porteri, Pascal Borry

Journal:

Patient Education and Counseling

Year:

2008

Language:

english

File:

PDF, 117 KB

english, 2008

36

Moss, Lenny.What Genes Can't Do

Journal:

Theoretical Medicine and Bioethics

Year:

2004

Language:

english

File:

PDF, 30 KB

english, 2004

37

Could minors be living kidney donors? A systematic review of guidelines, position papers and reports

Thys, Kristof, Van Assche, Kristof, Nobile, Hélène, Siebelink, Marion, Aujoulat, Isabelle, Schotsmans, Paul, Dobbels, Fabienne, Borry, Pascal

Journal:

Transplant International

Year:

2013

Language:

english

File:

PDF, 173 KB

english, 2013

38

Reporting practices for variants of uncertain significance from next generation sequencing technologies

Vears, Danya F., Sénécal, Karine, Borry, Pascal

Journal:

European Journal of Medical Genetics

Year:

2017

Language:

english

File:

PDF, 234 KB

english, 2017

39

Genuine participation in participant-centred research initiatives: the rhetoric and the potential reality

Feeney, Oliver, Borry, Pascal, Felzmann, Heike, Galvagni, Lucia, Haukkala, Ari, Loi, Michele, Nordal, Salvör, Rakic, Vojin, Riso, Brígida, Sterckx, Sigrid, Vears, Danya

Journal:

Journal of Community Genetics

Year:

2017

Language:

english

File:

PDF, 485 KB

english, 2017

40

Direct-to-consumer genetic testing — where should we focus the policy debate?

Caulfield, Timothy, Borry, Pascal

Journal:

The Medical Journal of Australia

Year:

2013

Language:

english

File:

PDF, 95 KB

english, 2013

41

How international is bioethics? A quantitative retrospective study

Pascal Borry, Paul Schotsmans, Kris Dierickx

Journal:

BMC Medical Ethics

Year:

2006

Language:

english

File:

PDF, 493 KB

english, 2006

42

The challenge of implementing genetic tests with clinical utility while avoiding unsound applications

Martina C. Cornel, Carla G. van El, Pascal Borry

Journal:

Journal of Community Genetics

Year:

2014

Language:

english

File:

PDF, 132 KB

english, 2014

43

Points to consider for prioritizing clinical genetic testing services: a European consensus process oriented at accountability for reasonableness

Severin, Franziska, Borry, Pascal, Cornel, Martina C, Daniels, Norman, Fellmann, Florence, Victoria Hodgson, Shirley, Howard, Heidi C, John, Jürgen, Kääriäinen, Helena, Kayserili, Hülya, Kent, Alastai

Journal:

European Journal of Human Genetics

Year:

2015

Language:

english

File:

PDF, 336 KB

english, 2015

44

The changing landscape of genetic testing and its impact on clinical and laboratory services and research in Europe

Hastings, Ros, de Wert, Guido, Fowler, Brian, Krawczak, Michael, Vermeulen, Eric, Bakker, Egbert, Borry, Pascal, Dondorp, Wybo, Nijsingh, Niels, Barton, David, Schmidtke, Jörg, van El, Carla G, Vermee

Journal:

European Journal of Human Genetics

Year:

2012

Language:

english

File:

PDF, 248 KB

english, 2012

45

Industry involvement in publicly funded biobanks

Caulfield, Timothy, Borry, Pascal, Gottweis, Herbert

Journal:

Nature Reviews Genetics

Year:

2014

Language:

english

File:

PDF, 631 KB

english, 2014

46

Why do participants enroll in population biobank studies? A systematic literature review

Nobile, Hélène, Vermeulen, Eric, Thys, Kristof, Bergmann, Manuela M, Borry, Pascal

Journal:

Expert Review of Molecular Diagnostics

Year:

2013

Language:

english

File:

PDF, 1.09 MB

english, 2013

47

Third party interpretation of raw genetic data: an ethical exploration

Badalato, Lauren, Kalokairinou, Louiza, Borry, Pascal

Journal:

European Journal of Human Genetics

Year:

2017

Language:

english

File:

PDF, 156 KB

english, 2017

48

Genetic health professionalsâ experiences with initiating reanalysis of genomic sequence data

Vears, Danya F., SÃ©nÃ©cal, Karine, Borry, Pascal

Journal:

Familial Cancer

Year:

2020

Language:

english

File:

PDF, 419 KB

english, 2020

49

AUTHOR, CONTRIBUTOR OR JUST A SIGNER? A QUANTITATIVE ANALYSIS OF AUTHORSHIP TRENDS IN THE FIELD OF BIOETHICS

PASCAL BORRY, PAUL SCHOTSMANS, KRIS DIERICKX

Journal:

Year:

2006

Language:

english

File:

PDF, 87 KB

english, 2006

50

Attitudes of cystic fibrosis patients and parents toward carrier screening and related reproductive issues

Janssens, Sandra, Chokoshvilli, Davit, Binst, Carmen, Mahieu, Inge, Henneman, Lidewij, De Paepe, Anne, Borry, Pascal

Journal:

European Journal of Human Genetics

Year:

2015

Language:

english

File:

PDF, 382 KB

english, 2015

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